Publications 2017
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Longitudinal study of social participation and well-being among persons with spinal cord injury and their partners (pro-WELL)
Fekete C, Brinkhof MWG, Tough H, Siegrist J: Longitudinal study of social participation and well-being among persons with spinal cord injury and their partners (pro-WELL). BMJ Open 2017;7.
Community survey spinal cord injury, Productive activities, Wellbeing
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The international spinal cord injury survey and the learning health system for SCI
The special issue, published in the American Journal of Physical Medicine and Rehabilitation, is about the learning health system for spinal cord injury initiative, and in particular the international Spinal Cord Injury Survey (InSCI) that is the essential data platform for this initiative.
The special issue begins by introducing the components of the learning health system for SCI, focusing primarily on the technical aspects of the InSCI survey and its implementation. For context, an introduction of the learning health system approach as well as the implementation strategy of stakeholder dialogues, is also included. The second part of the issue provides a sample of the participating countries. Each country profile contains a baseline of the SCI experience in the country, a review of the understanding of the societal response, and a description of the own survey strategy.
InSCI, International research spinal cord injury, Learning health system, Survey
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Availability and need of home adaptations for personal mobility among individuals with spinal cord injury
Hertig-Godeschalk A, Gemperl A, Arnet U, Hinrichs T, for the SwiSCI study group: Availability and need of home adaptations for personal mobility among individuals with spinal cord injury. The Journal of Spinal Cord Medicine, Published online: 30 Mar 2017. http://dx.doi.org/10.1080/10790268.2017.1308995.
Environmental factors, Mobility, Quality of life
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Health care utilization in persons with spinal cord injury: part 1 – outpatient services.
Gemperli A, Ronca E, Scheel-Sailer A, Koch HG, Brach M, Trezzini B, SwiSCI Study Group.: Health care utilization in persons with spinal cord injury: part 1 - outpatient services. Spinal Cord. 2017 May 2. doi: 10.1038/sc.2017.44.
Community survey spinal cord injury, Environmental factors, Functioning, Health care, Health services, Health system
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Health care utilization in persons with spinal cord injury: part 2 – determinants, geographic variation and comparison with the general population.
Ronca E, Scheel-Sailer A, Koch HG, Gemperli A, SwiSCI Study Group: Health care utilization in persons with spinal cord injury: part 2 - determinants, geographic variation and comparison with the general population. Spinal Cord. 2017 May 2. doi: 10.1038/sc.2017.38.
Community survey spinal cord injury, Environmental factors, Functioning, Health care, Health services, Health system
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Subjective Caregiver Burden and Caregiver Satisfaction: The Role of Partner Relationship Quality and Reciprocity.
Tough H, Brinkhof MW, Siegrist J, Fekete C: Subjective Caregiver Burden and Caregiver Satisfaction: The Role of Partner Relationship Quality and Reciprocity. Arch Phys Med Rehabil. 2017 Mar 9. pii: S0003-9993(17)30143-0. doi: 10.1016/j.apmr.2017.02.009.
Partnership, Productive activities, Quality of life
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Estimating the Incidence of Traumatic Spinal Cord Injuries in Switzerland: Using Administrative Data to Identify Potential Coverage Error in a Cohort Study
Chamberlain JD, Ronca E, Brinkhof MWG: Estimating the incidence of traumatic spinal cord injuries in Switzerland: Using administrative data to identify potential coverage error in a cohort study. Swiss Med Wkly. 2017;147:w14430.
Cohort study, Epidemiology, Methodology, Traumatic spinal cord injury
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Chronic pain, depression and quality of life in individuals with spinal cord injury: Mediating role of participation
Müller R, Landmann G, Béchir M, Hinrichs T, Arnet U, Jordan X, Brinkhof M, for the SwiSCI Study Group: Chronic pain, depression and quality of life in individuals with spinal cord injury: Mediating role of participation. J Rehabil Med 2017; 49: 489–496.
Community survey spinal cord injury, Depression, Pain, Participation, Quality of life
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Social relationships, mental health and wellbeing in physical disability: a systematic review.
Tough H, Siegrist J, Fekete C. Social relationships, mental health and wellbeing in physical disability: a systematic review. BMC public health. May 08 2017;17(1):414.
Quality of life, Wellbeing, social productivity,
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Work and family conflicts in employees with spinal cord injury and their caregiving partners
Fekete C, Siegrist J, Tough H, and Brinkhof MWG: Work and family conflicts in employees with spinal cord injury and their caregiving partners. Spinal Cord advance online publication, 29 August 2017; doi:10.1038/sc.2017.100
Care, Productive activities, Quality of life, Work
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Key demands and characteristics of occupations performed by individuals with spinal cord injury living in Switzerland.
Nützi M, Trezzini B, Ronca E, Schwegler U: Key demands and characteristics of occupations performed by individuals with spinal cord injury living in Switzerland. Spinal Cord. 2017 Aug 8. doi: 10.1038/sc.2017.84.
Activity and participation, Job Matching Tool, Labour market participation, Work
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Health impact of objective burden, subjective burden and positive aspects of caregiving: an observational study among caregivers in Switzerland
Fekete C, Tough H, Siegrist J, Brinkhof MWG: Health impact of objective burden, subjective burden and positive aspects of caregiving: an observational study among caregivers in Switzerland. BMJ Open 2017;7:e017369. doi:10.1136/bmjopen-2017-017369.
Care, social productivity,
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A Structured Approach to Capture the Lived Experience of Spinal Cord Injury
Fekete C, Post M, Bickenbach J, Middleton J, Prodinger B, Selb M, Stucki G: A Structured Approach to Capture the Lived Experience of Spinal Cord Injury. Data Model and Questionnaire of the International Spinal Cord Injury Community Survey. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
InSCI, International research spinal cord injury
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Stakeholder Dialogue as Deliberation for Decision Making in Health Policy and Systems
Rubinelli S, Von Groote P: Stakeholder Dialogue as Deliberation for Decision Making in Health Policy and Systems. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI, International research spinal cord injury
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Study Protocol of the International Spinal Cord Injury (InSCI) Community Survey
Gross-Hemmi M, Post M, Ehrmann C, Fekete C, Hasnan N, Middleton J, Reinhardt J, Strøm V, Stucki G: Study Protocol of the International Spinal Cord Injury (InSCI) Community Survey. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Community survey spinal cord injury, InSCI, International research spinal cord injury
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Rehabilitation Services Provision and Payment
Gutenbrunner C, Blumenthal M, Geng V, Egen C: Rehabilitation Services Provision and Payment. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
InSCI, International research spinal cord injury
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The Cross-Cultural Societal Response to SCI
Pacheco Barzallo D, Gross-Hemmi M: The Cross-Cultural Societal Response to SCI. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
InSCI, International research spinal cord injury
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The Implementation Challenge and the Learning Health System for SCI Initiative
Stucki G, Bickenbach J: The Implementation Challenge and the Learning Health System for SCI Initiative. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Implementation, InSCI, International research spinal cord injury, Learning health system
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People with Spinal Cord Injury in Switzerland
Gross-Hemmi M, Pacheco Barzallo D: People with Spinal Cord Injury in Switzerland. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in China
Reinhardt J, Zheng Y, Xu G, Lu X, Yin Y, Liu S, Gao Q, Xiong X, He C, Li H, Li J: People with Spinal Cord Injury in China. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Germany
Blumenthal M, Geng V, Egen C, Gutenbrunner C: People with Spinal Cord Injury in Germany. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Indonesia
Tulaar A, Karyana M, Wahyuni L, Paulus A, Tinduh D, Anestherita F, Wangge G: People with Spinal Cord Injury in Indonesia. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Israel
Zwecker M, Wolff J, Shaoul T, Zeilig G, Treger I: People with Spinal Cord Injury in Israel. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Italy
Baricich A, Amico A, Zampolini M, Gimigliano F, Cisari C, Fiore P: People with Spinal Cord Injury in Italy. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Korea
Han Z, Lee B, Kim W, Lee S, Im H, Kim C, Song K, Ko H, Bang M, Park C: People with Spinal Cord Injury in Korea. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Lithuania
Juocevicius A, Jamontaite I, Adomaviciene A: People with Spinal Cord Injury in Lithuania. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Malaysia
Engkasan J, Hasnan N, Yusuf Y, Latif L: People with Spinal Cord Injury in Malaysia. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in the Netherlands
Post M, Nooijen C, Postma K, Dekkers J, Penninx F, van den Berg-Emons R, Stam H: People with Spinal Cord Injury in the Netherlands. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in New Zealand
Van den Heuvel M, Jansz L, Xiong X, Singhal B: People with Spinal Cord Injury in New Zealand. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Norway
Strøm V, Månum G, Leiulfsrud A, Wedege P, Rekand T, Halvorsen A, Fjellheim L, Stanghelle J: People with Spinal Cord Injury in Norway.American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Poland
Tederko P, Jagodziński R, Krasuski M, Tarnacka B: People with Spinal Cord Injury in Poland. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Portugal
Campos I, Margalho P, Lopes A, Branco C, Faria F, Caldas J, Cunha M, Andrade M, Lains J: People with Spinal Cord Injury in Portugal. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in South Africa
Joseph C, Scriba D, Wilson V, Mothabeng J, Theron F: People with Spinal Cord Injury in South Africa. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Spain
Avellanet M, Gonzalez-Viejo M: People with Spinal Cord Injury in Spain. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in Thailand
Kovindha A: People with Spinal Cord Injury in Thailand. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI
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People with Spinal Cord Injury in the United States
Richards C, MacKenzie N, Roberts S, Escorpizo R: People with Spinal Cord Injury in the United States. American Journal of Physical Medicine & Rehabilitation, Volume 96, Number 2 (Suppl), February 2017.
Health system, InSCI