Pathway 2: The Community Survey
Pathway 2 is a survey of persons with SCI living in the community.
The study aims to include all persons aged over 16 years with traumatic and non-traumatic SCI living in Switzerland. The first SwiSCI community survey was conducted between September 2011 and March 2013.
The survey is repeated at five-year intervals to obtain longitudinal and up-to-date descriptions of the SCI community in Switzerland. Particular challenges of Pathway 2 are to obtain a comprehensive and detailed picture of the participants' situation and to collect prevalence data on functioning and disability. Based on these data SwiSCI can describe and better understand the relevant aspects of life in the Swiss SCI community.
What to measure
The dataset includes the following elements:
- categories of the minimal ICF Generic Set
- Brief ICF Core Set for SCI-early post-acute
- Brief ICF Core Set for SCI-long term
- Statistical Set
- Relevant personal factors
In total SwiSCI applies 610 questionnaire items.
Modular structure of the SwiSCI survey
The survey 2011-2013 contained three subsequent waves that were sent out with an interval of about three months:
The first wave (Starter Module) is a brief 19-item questionnaire on basic socio-demographics, lesion characteristics and the care situation
The second wave (Basic Module) is a 124-item questionnaire comprising detailed information on functioning, health, environmental and personal factors
The third wave (Specific Modules) consists of three thematically different specific modules to which participants of the second wave are randomly assigned. The specific modules include the Health Behavior and Personal Factors Module (186 items), the Work Module (79 items), and the Health Services Research Module (202 items).