SwiSCI-Host | SPF
SwiSCI-Host | SPS

2017

The international spinal cord injury survey and the learning health system for SCI

The special issue, published in the American Journal of Physical Medicine and Rehabilitation, is about the learning health system for spinal cord injury initiative, and in particular the international Spinal Cord Injury Survey (InSCI) that is the essential data platform for this initiative. 

The special issue begins by introducing the components of the learning health system for SCI, focusing primarily on the technical aspects of the InSCI survey and its implementation. For context, an introduction of the learning health system approach as well as the implementation strategy of stakeholder dialogues, is also included. The second part of the issue provides a sample of the participating countries. Each country profile contains a baseline of the SCI experience in the country, a review of the understanding of the societal response, and a description of the own survey strategy. 

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Content

Editorial

  • Cieza, Alarcos: The International Spinal Cord Injury Survey and the Learning Health System for Spinal Cord Injury

Guest Editorial

  • Stucki, Gerold; Bickenbach, Jerome: The International Spinal Cord Injury Survey and the Learning Health System for Spinal Cord Injury: Guest Editorial

Research Articles

  • Fekete, Christine et al: A Structured Approach to Capture the Lived Experience of Spinal Cord Injury: Data Model and Questionnaire of the International Spinal Cord Injury Community Survey
  • Rubinelli, Sara et al: Stakeholder Dialogue as Deliberation for Decision Making in Health Policy and Systems: The Approach from Argumentation Theory
  • Gross-Hemmi, Mirja et al: Study Protocol of the International Spinal Cord Injury (InSCI) Community Survey
  • Gutenbrunner, Christoph et al: Rehabilitation Services Provision and Payment
  • Pacheco-Barzallo, Diana et al: The Cross-Cultural Societal Response to SCI: Health and Related Systems
  • Stucki, Gerold et al: The Implementation Challenge and the Learning Health System for SCI Initiative

Country Reports

  • Reinhardt, Jan D. et al: People with Spinal Cord Injury in China
  • Blumenthal, Melanie et al: People with Spinal Cord Injury in Germany
  • Rapidi, Christina-Anastasia et al: People with Spinal Cord Injury in Greece
  • Tulaar, Angela Bibiana Maria et al: People with Spinal Cord Injury in Indonesia
  • Zwecker, Manuel et al: People with Spinal Cord Injury in Israel
  • Baricich, Alessio et al: People with Spinal Cord Injury in Italy
  • Han, Zee-A et al: People with Spinal Cord Injury in Korea
  • Juocevicius, Alvydas et al: People with Spinal Cord Injury in Lithuania
  • Engkasan, Julia Patrick et al: People with Spinal Cord Injury in Malaysia
  • Post, Marcel W.M. et al: People with Spinal Cord Injury in the Netherlands
  • van den Heuvel, Maria et al: People with Spinal Cord Injury in New Zealand
  • Strøm, Vegard et al: People with Spinal Cord Injury in Norway
  • Tederko, Piotr et al: People with Spinal Cord Injury in Poland
  • Campos, Ines et al: People with Spinal Cord Injury in Portugal
  • Joseph, Conran et al: People with Spinal Cord Injury in Republic of South Africa
  • Avellanet, Merce et al: People with Spinal Cord Injury in Spain
  • Gross-Hemmi, Mirja et al: People with Spinal Cord Injury in Switzerland
  • Kovindha, Apichana: People with Spinal Cord Injury in Thailand
  • Richards, Christine et al: People with Spinal Cord Injury in the United States

Tags: Survey, International, InSCI, Learning health system

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