As researcher at the Department of Rehabilitation Medicine of the Hannover Medical School Andrea Bökel is coordinator of the InSCI survey in Germany - the "GerSCI" study. For her scientific work in the context of GerSCI Andrea Bökel received the Sponsorship Award of the Zarnekow Foundation, endowed with € 5,000. The award was granted during the 30th Rehabilitation Science Colloquium, which took place virtually from March 22-25, 2021.
InSCI emerged out of the SwiSCI role model and evolved to an international research platform that includes approximately 12.500 study participants from 22 countries. For numerous countries, it was the first time ever that persons with SCI came into the focus of research. Findings of the InSCI survey will help raising awareness for the needs of persons with SCI among researchers and stakeholders.
Now, the first publications of the study results of the InSCI survey 2017 are published:
- Bickenbach J, Batistella L, Gutenbrunner C, Middleton J, Post MW, Stucki G: The International Spinal Cord Injury Survey: The Way Forward. Archives of Physical Medicine and Rehabilitation, available online 12 July 2020.
- Fekete C, Brach M, Ehrmann C, Post MWM, Stucki G: Cohort profile of the international spinal cord injury community survey implemented in 22 countries. Archives of Physical Medicine and Rehabilitation, available online 10 June 2020.
- Ehrmann C, Reinhardt JD, Joseph C, Hasnan dN, Perrouin-Verbe B, Tederko P, Zampolini M: Describing functioning in people living with spinal cord injury across 22 Countries: A graphical modeling approach. Archives of Physical Medicine and Rehabilitation, avaiable online 25.09.2020.
- Reinhardt JD, Middleton J, Bokel A, Kovindha A, Kyriakides A, Hajjioui A, Kouda K, Kujawa J: Environmental barriers experienced by people with spinal cord injury across 22 countries: Results from a cross-sectional survey. Archives of Physical Medicine and Rehabilitation, available online 2. June 2020.
- Post MW, Reinhardt JD, Avellanet M, Escorpizo R, Engkasan JP, Schwegler U, Schedin Leiulfsrud A: Employment among people with spinal cord injury in 22 countries across the world: Results from the international spinal cord injury community survey. Archives of Physical Medicine and Rehabilitation, available online 13 July 2020.
- Pacheco Barzallo D, Gross-Hemmi M, Bickenbach J, Juocevicius A, Popa D, Wahyuni LK, Strøm V: Quality of life and the health system: A 22-country comparison of the situation of people with spinal cord injury. Archives of Physical Medicine and Rehabilitation, available online 10. June 2020.
The German InSCI team published a paper about perceived environmental barriers of the German study population and their associations with quality of life. The results show that the most life-hardening barriers are related to infrastructure, a category in which most barriers are modifiable, for example, buildings or transportation. Quality of life decreased with increasing experience of barriers.
At the ISCoS Annual Scientific Meeting 2019 in Nice first cross-country results have been presented. Here you find the poster of Mirja Gross-Hemmi, scientific coordinator of the InSCI Study Center.