SwiSCI - Quality of life
Hertig-Godeschalk A, Gemperl A, Arnet U, Hinrichs T, for the SwiSCI study group: Availability and need of home adaptations for personal mobility among individuals with spinal cord injury. The Journal of Spinal Cord Medicine, Published online: 30 Mar 2017. http://dx.doi.org/10.1080/10790268.2017.1308995.
Müller R, Landmann G, Béchir M, Hinrichs T, Arnet U, Jordan X, Brinkhof M, for the SwiSCI Study Group: Chronic pain, depression and quality of life in individuals with spinal cord injury: Mediating role of participation. J Rehabil Med 2017; 49: 489–496.
Swiss Spinal Cord Injury Cohort Study - SwiSCI - is a comprehensive cohort study for persons with spinal cord injuries (SCI) in Switzerland, funded by Swiss Paraplegic Foundation.
The core research of SwiSCI focuses on many aspects of functioning, health and quality of life of persons with SCI along the continuum of care, in the community and along their life span.
SwiSCI intends to establish a scientific basis for cost-effective and evidence-based care for people with SCI in the clinical and community setting. Furthermore the study will help to optimize procedures and planning of specialized services in Switzerland and elsewhere. SwiSCI has role model character for multi-disciplinary rehabilitation research in Switzerland.
The German InSCI team published a paper about perceived environmental barriers of the German study population and their associations with quality of life. The results show that the most life-hardening barriers are related to infrastructure, a category in which most barriers are modifiable, for example, buildings or transportation. Quality of life decreased with increasing experience of barriers.
Siegrist J and Fekete C: Fair opportunites, social productivity and wellbeing in disability: Towards a theoretical foundation. J Rehabil Med, 2016 Jun 13;48(6):494-9. doi: 10.2340/16501977-2106.
Fekete C, Siegrist J, Reinhardt JD, Brinkhof M, for the SwiSCI Study Group: Is Financial Hardship Associated with Reduced Health in Disability? The Case of Spinal Cord Injury in Switzerland. PLOS One, February 2014, Volume 9, Issue 2.
Bökel A, Dierks ML, Gutenbrunner C, Weidner N, Geng V, Kalke YB, Liebscher T, Abel FR, Sturm C: Perceived environmental barriers for people with spinal cord injury in Germany and their influence on quality of life. J Rehabil Med. 2020 Aug 24;52(8).
Reinhardt JD, Ballert CS, Brinkhof MWG, Post MWM: Perceived impact of environmental barriers on participation among people living with spinal cord injury in Switzerland, Journal of Rehabilitation Medicine 2016; 48: 210-218.
Fekete C, Siegrist J, Post MWM, Brinkhof MWG, and for the SwiSCI Study Group: Productive activities, mental health and quality of life in disability: exploring the role enhancement and the role strain hypotheses. BMC Psychology (2019) 7:1, https://doi.org/10.1186/s40359-018-0276-6
Pacheco Barzallo D, Gross-Hemmi M, Bickenbach J, Juocevicius A, Popa D, Wahyuni LK, Strøm V: Quality of life and the health system: A 22-country comparison of the situation of people with spinal cord injury. Archives of Physical Medicine and Rehabilitation, available online 10. June 2020, https://doi.org/10.1016/j.apmr.2020.04.030.
Tough H, Siegrist J, Fekete C. Social relationships, mental health and wellbeing in physical disability: a systematic review. BMC public health. May 08 2017;17(1):414.
In order to better understand and optimize the quality of life and health of persons with SCI SwiSCI strives for three special aims:
- the development of comprehensive knowledge on functioning, disability, health and aging with SCI in Switzerland;
- the identification of approaches centering in optimizing care, for example the use of devices, or decisions by law influencing the SCI population;
- the development of an epidemiologic database containing broad information on the characteristics of spinal cord injuries for health professionals, researchers and stakeholders in social and health care policy;
- provide a research platform for nested and joint projects and develop research capacity.
Tough H, Brinkhof MW, Siegrist J, Fekete C: Subjective Caregiver Burden and Caregiver Satisfaction: The Role of Partner Relationship Quality and Reciprocity. Arch Phys Med Rehabil. 2017 Mar 9. pii: S0003-9993(17)30143-0. doi: 10.1016/j.apmr.2017.02.009. [Epub ahead of print].
Fekete C, Siegrist J, Tough H, and Brinkhof MWG: Work and family conflicts in employees with spinal cord injury and their caregiving partners. Spinal Cord advance online publication, 29 August 2017; doi:10.1038/sc.2017.100
Fekete C, Wahrendorf M, Reinhardt JD, Post MW, Siegrist J.: Work stress and quality of life in persons with disabilities from four European countries: the case of spinal cord injury. 2014 Jun;23(5):1661-71. doi: 10.1007/s11136-013-0610-7. Epub 2014 Jan 3.