SwiSCI-Host | SPF
SwiSCI-Host | SPS
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SwiSCI - Quality of life

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Cohort Study

Swiss Spinal Cord Injury Cohort Study - SwiSCI - is a comprehensive cohort study for persons with spinal cord injuries (SCI) in Switzerland, funded by Swiss Paraplegic Foundation.

The core research of SwiSCI focuses on many aspects of functioning, health and quality of life of persons with SCI along the continuum of care, in the community and along their life span.

SwiSCI intends to establish a scientific basis for cost-effective and evidence-based care for people with SCI in the clinical and community setting. Furthermore the study will help to optimize procedures and planning of specialized services in Switzerland and elsewhere. SwiSCI has role model character for multi-disciplinary rehabilitation research in Switzerland.

Environmental barriers of the German study population

The German InSCI team published a paper about perceived environmental barriers of the German study population and their associations with quality of life. The results show that the most life-hardening barriers are related to infrastructure, a category in which most barriers are modifiable, for example, buildings or transportation. Quality of life decreased with increasing experience of barriers.

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Quality of Life and the Health System: A 22-Country Comparison of the Situation of People With Spinal Cord Injury

Pacheco Barzallo D, Gross-Hemmi M, Bickenbach J, Juocevicius A, Popa D, Wahyuni LK, Strøm V: Quality of life and the health system: A 22-country comparison of the situation of people with spinal cord injury. Archives of Physical Medicine and Rehabilitation, available online 10. June 2020, https://doi.org/10.1016/j.apmr.2020.04.030.

Study Aims

In order to better understand and optimize the quality of life and health of persons with SCI SwiSCI strives for three special aims:

  1. the development of comprehensive knowledge on functioning, disability, health and aging with SCI in Switzerland;
  2. the identification of approaches centering in optimizing care, for example the use of devices, or decisions by law influencing the SCI population;
  3. the development of an epidemiologic database containing broad information on the characteristics of spinal cord injuries for health professionals, researchers and stakeholders in social and health care policy;
  4. provide a research platform for nested and joint projects and develop research capacity.

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