SwiSCI-Host | SPF
SwiSCI-Host | SPS

SwiSCI

SwiSCI - Care

Den gelähmten Partner pflegen: Wie wirkt sich dies auf die Gesundheit aus?

Oftmals leisten Angehörige einen grossen Beitrag zur Unterstützung und Pflege von rückenmarksverletzten Menschen. Bisher ist wenig darüber bekannt, ob diese Pflegeaufgabe eine Bereicherung oder eine gesundheitliche Belastung für die pflegenden Angehörigen darstellt.

Im SwiSCI-Teilprojekte pro-WELL wurden querschnittgelähmten Menschen und ihre Partner gemeinsam zu verschiedenen gesundheitsrelevanten Themen befragt. Nun haben die Forscher die gesundheitlichen Auswirkungen von Pflegetätigkeiten bei den Partnern untersucht [1].

Health Services Research

Physiotherapy

The Health Services Research group at Swiss Paraplegic Research investigates and intends to improve how persons with spinal cord injury utilize health care services.

Disabled patients can be high users of medical care, often require services from multidisciplinary teams and bring with them multiple needs and expectations. The needs may not all be met within the setting offered by the health care provider. In a system that mainly focuses on cure rather than the improvement and the lived experience, losses in the perceived quality of care are to be expected.

Study Aims

In order to better understand and optimize the quality of life and health of persons with SCI SwiSCI strives for three special aims:

  1. the development of comprehensive knowledge on functioning, disability, health and aging with SCI in Switzerland;
  2. the identification of approaches centering in optimizing care, for example the use of devices, or decisions by law influencing the SCI population;
  3. the development of an epidemiologic database containing broad information on the characteristics of spinal cord injuries for health professionals, researchers and stakeholders in social and health care policy;
  4. provide a research platform for nested and joint projects and develop research capacity.
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